Forever Bentley: A Mother's Journey Through Grief

June 15th holds two powerful meanings this year — it’s Father’s Day, and it’s also Dravet Bereavement Day.

For many, today is filled with joy and celebration. But for others, it’s a reminder of what’s missing. Of the children who should still be here. Of the moments and memories that were stolen too soon.

This photo of Bentley is everything to me. It captures love, laughter, and a life that deserved so much more time.

Dravet Syndrome took our baby. It took birthdays, first days of school, snuggles, giggles, and a lifetime of memories we’ll never get to make. And yet, the love I have for Bentley continues to grow — deeper, stronger, and more fierce with every passing day.

Today, I stand with every parent who knows the pain of this kind of loss. You are not alone. Your grief is valid. Your love still lives on.

💜 Forever Bentley.
💜 Forever our fight.
💜 Forever remembered.